Our Baby Girl needs a Bone Marrow Transplant
~ Fundraiser ~
Help Helena "Donation-Yoga" Class
Sunday, March 15
*ARRIVE by 12:30p to register
Class Begins 1:00p
*segments of this class led by various Samatone instructors (alternating throughout)
-Suze, Kim, Jen C, Sheryl and more....
*If unable to attend, please VENMO
[email protected]
OR leave (at studio) a check made payable to Suze Curtis
OR mail check to: 14902 Preston Road, #404-596, Dallas TX 75254
-ALL monies go directly to Helena's treatment
UPDATE on Treatment
Delores is a part of our Samatone Family all these may years;
she is also a Sonographer for Baylor Medical;
and Abuela to beautiful Helena.
Helena has been diagnosed with MPS1
-a rare disease affecting only 1 in 100,000 children; .
Little Helena needs a bone marrow transplant;
and will be hospitalized a minimum of 4 months.
Video about MPS1 explaining this rare disease.
From Delores:
This is just the beginning "....it breaks my heart to think about what Helena will go through,
but it’s necessary to keep her as healthy as possible and to give her the opportunity to live a long, long life.
She’s a strong, funny, and precious little girl. She endures her weekly enzyme replacement therapy (a 6-hr day at the hospital);
and has gone thru numerous small surgical procedures, CT’s, MRI’s, x-rays, and ongoing consults with many different medical specialists...it just goes on and on.
She’s currently into Toy Story and baby shark. She loves to play with her baby dolls and listen and dance to music."